Contenido del artículo principal

Resumen

Objetivo: Estabelecer a medida de ativação de pacientes com doença renal crônica e seus fatores associados. Metodologia: Revisão integrativa de literatura realizada nas seguintes bases de dados: Pubmed, Lilacs, Scielo, Scopus, Science Direct e Insignia Health. Foram utilizados os descritores: Patient Activation, Nephrology, Kidney e Renal Insufficiency, Chronic e seus correspondentes em português e espanhol e os operadores booleanos AND e OR. Não foi utilizado filtro de data para as buscas. Nove manuscritos compuseram a amostra final desta revisão. Resultados: A média do escore de ativação variou entre 51±10 e 65,02±16 pontos, com o predomínio de pessoas com alta ativação (níveis 3 e 4). A ativação do paciente foi associada a múltiplas variáveis, entre elas a idade, condição socioeconômica, escolaridade e carga de sintomas. Conclusões: Conhecer o nível de ativação dos pacientes e os fatores associados a ele direciona a atuação do profissional de saúde para obtenção e/ou manutenção da alta ativação.

Palabras clave

activación nefrología insuficiencia renal crónica autogestión

Detalles del artículo

Cómo citar
1.
Raimundo-Leone DR, de Paula-Silva AC, Silva-de Aguiar A. Ativação do paciente com diagnóstico de doença renal crônica: uma revisão integrativa. Enferm Nefrol [Internet]. 2021 [consultado 21 Nov 2024];24(1):[aprox. 13 p.]. Disponible en: https://enfermerianefrologica.com/revista/article/view/4349

Referencias

  1. Barreto Marinho AWG, da Paz Penha A, Tolentino Silva M, Freire Galvão T. Prevalência de doença renal crônica em adultos no Brasil: revisão sistemática da literatura. Cad. Saúde colet. 2017 Jul-Set;25(3):379-88.
  2. Saldanha Thomé F, Cintra Sesso R, Lopes AA, Lugon JR, Tzanno Martins C. Inquérito Brasileiro de Diálise Crônica 2017. J Bras Nefrol. 2019 Abr-Jun;41(2):208-14.
  3. Alcalde PR, Mastroianni Kirsztajn G. Gastos do Sistema Público de Saúde com doença renal crônica. J. Bras. Nefrol. 2018 Abr-Jun;40(2):1-8.
  4. Berger Oliveira AP, Berger Schmidt D, Malucelli Amatneeks T, dos Santos JC, Raizz Cavallet LH, Michel RB. Qualidade de vida em pacientes em hemodiálise e a relação com mortalidade, hospitalizações e baixa adesão ao tratamento. J. Bras. Nefrol. 2016 Out-Dez;38(4):411-20.
  5. Filgueiras de Assis Mello MV, Angelo M. Impacto da doença renal crônica: experiências de pacientes e familiares do extremo Norte do Brasil. Invest.Educ. Enferm. 2018 [consultado 29 jul 2020]; 36(1): [aprox. 10 p.]. Disponível em: http://dx.doi.org/10.17533/udea.iee.v36n1e02.
  6. Insignia Health. Increasing Activation Starts with Measurement. Insignia Health. [consultado 30 dez 2020]. Disponível em: https://s3.amazonaws.com/insigniahealth.com-assets/PAM-Fact-Sheet.20200505.pdf?mtime=20200505094829&focal=none.
  7. Sacks RM, Greene J, Hibbard J, Overton V, Parrotta CD. Does patient activation predict the course of type 2 diabetes? A longitudinal study. Patient Educ Couns. 2017 Jul;100(7):1268-75.
  8. Sacks RM, Greene J, Hibbard J, Overton V. How well do patient activation scores predict depression outcomes one year later? J Affect Disord. 2014 Dez;169:1-6.
  9. Bos-Touwen I, Schuurmans M, Monninkhof E, Korpershoek Y, Spruit-Bentvelzen L, Ertugrul I, et al. Patient and Disease Characteristics Associated with Activation for Self-Management in Patients with Diabetes, Chronic Obstructive Pulmonary Disease, Chronic Heart Failure and Chronic Renal Disease: A Cross-Sectional Survey Study. PloS one. 2015 [consultado 20 mai 2020]; 10(5): [aprox. 16 p.]. Disponível em: https://doi.org/10.1371/journal.pone.0126400.
  10. Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient Self-management of Chronic Disease in Primary Care. JAMA. 2002 Nov;288(19):2469-75.
  11. Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004 Jun;39(4):1005-26.
  12. Hibbard J, Greene J. What the evidence shows about patient activation: better health outcomes and care experiences; mewer data on costs. Health affairs. 2013 [consultado 12 mai 2020]; 32: [aprox. 8 p.]. Disponível em: https://doi.org/10.1377/hlthaff.2012.1061.
  13. Insignia Healht. Patient Activation Measure® (PAM®). [consultado 15 mar 2020]. Disponível em: https://s3.amazonaws.com/insigniahealth.com-assets/PAM-Fact-Sheet.20200505.pdf?mtime=20200505094829&focal=none.
  14. Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the patient activation measure. Health Serv Res. 2005 Fev; 40(6 Pt 1):207-14.
  15. Greene J, Hibbard JH, Sacks R, Overton V, Parrotta CD. When patient activation levels change, health outcomes and costs change, too. Health Affairs. 2015 [Consultado 08 ago 2020]; 34: [aprox. 8 p.]. Disponível em: https://doi.org/10.1377/hlthaff.2014.0452.
  16. Hibbard JH, Mahoney E, Sonet E. Does patient activation level affect the cancer patient journey? Patient Educ Couns. 2017 100(7):1276-79.
  17. Zimbudzi E, Lo C, Ranasinha S, Fulcher GR, Jan S, Kerr PG, et al. Factors associated with patient activation in an Australian population with comorbid diabetes and chronic kidney disease: a cross sectional study. BMJ Open. 2017 [Consultado 05 mai 2020]; 7(10): [aprox. 9 p.]. Disponível em: https://doi.org/10.1136/bmjopen-2017-017695.
  18. Greene J, Hibbard JH. Why does patient activation matter? An examination of the relationships between patient activation and health-related outcomes. J Gen Intern Med. 2012 Nov;27(5):520-6.
  19. Souza MT, Silva MD, Carvalho R. Integrative review: what is it? How to do it?. Einsten. 2010 [consultado 29 mai 2020]; 8(1): [aprox. 5 p.]. Disponível em: https://doi.org/10.1590/s1679-45082010rw1134.
  20. Principais itens para relatar Revisões sistemáticas e Meta-análises: A recomendação PRISMA. Epidemiol. Serv. Saúde. 2015 [consultado 29 jan 2020]; 24(2): [aprox. 8 p.]. Disponível em: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S2237-96222015000200335&lng=en. http://dx.doi.org/10.5123/S1679-49742015000200017.
  21. Velez-Bermúdez M, Christensen AJ, Kinner EM, Roche AL, Fraer M. Exploring the Relationship Between Patient Activation, Treatment Satisfaction, and Decisional Conflict in Patients Approaching End-Stage Renal Disease. Ann Behav Med. 2018 Set;53(9):816-26.
  22. Nelson R, Pankratz V,Ghahate D, Bobelu J, Faber T, Shah V. Home-based kidney care, patient activation, and risk factors for CKD progression in Zuni Indians: a randomized, controlled clinical trial. Clin J Am Soc Nephrol. 2018 [consultado 15 ago 2020]; (12): [aprox. 9 p.]. Disponível em: https://doi.org/10.2215/CJN.06910618.
  23. Johnson ML, Zimmerman L, Welch JL, Hertzog M, Pozehl B, Plumb T. Patient activation with knowledge, self-management and confidence in chronic kidney disease. J Ren Care. 2016 Mar; 42(1):15-22.
  24. Lo C, Zimbudzi E, Teede HJ, Kerr PG, Ranasinha S, Cass A, et al. Patient-reported barriers and outcomes associated with poor glycaemic and blood pressure control in co-morbid diabetes and chronic kidney disease. J Diabetes Complications. 2019 Jan;33(1):63-8.
  25. Zimbudzi E, Lo C, Ranasinha S, Kerr PG, Polkinghorne KR, Teede H, et al. The association between patient activation and self-care practices: A cross-sectional study of an Australian population with comorbid diabetes and chronic kidney disease. Health Expect. 2017 [consultado 01 mar 2020]; 20(6): [aprox. 10 p.]. 1375-84. Disponível em: https://doi.org/10.1111/hex.12577.
  26. Van Bulck L, Claes K, Dierickx K, Hellemans A, Jamar S, Smets, et al. Patient and treatment characteristics associated with patient activation in patients undergoing hemodialysis: a cross-sectional study. BMC Nephrol. 2018 [consultado 15 mai 2020];(1): [aprox. 9 p.]. Disponível em: https://doi.org/10.1186/s12882-018-0917-2.
  27. The Renal Association. Transforming participation in chronic kidney disease. Bristol; 2019 [consultado 06 jun 2020]; Disponível em: https://www.thinkkidneys.nhs.uk/ckd/wp-content/uploads/sites/4/2019/01/
  28. Transforming-Participation-in-ChronicKidney-Dis.NQF. National Quality Forum: Quality positioning system. 2016 [consultado 02 jan 2021]. Disponível em: file://C:/Users/user/Downloads/pfcc_2015-2017_final_report.pdf.
  29. Cameron J, Worrall-Carter L, Riegel B, Lo SK, Stewart S. Testing a Model of Patient Characteristics, Psychologic Status, and Cognitive Function as Predictors of Self-Care in Persons with Chronic Heart Failure. Heart lung. 2009 Fev; 38(5):410-8.
  30. Tusa N, Kautiainen H, Elfving P, Sinikallio S, Mäntyselkä P. Relationship between patient activation measurement and self-rated health in patients with chronic diseases. BMC Fam Pract. 2020 [consultado 09 jan 2021]; 21(1): [aprox. 8 p.]. Disponível em: https://doi.org/10.1186/s12875-020-01301-y.
  31. Dunlay SM, Griffin JM, Redfield MM, Roger VL. Patient Activation in Acute Decompensated Heart Failure. J Cardiovasc Nurs. 2017 [consultado 11 jan 2021]; 32(6): [aprox. 8 p.]. Disponível em: https://doi.org/10.1097/JCN.000000000000036.
  32. Shortell S, Poon BY, Ramsay P, Rodriguez H, Ivey S, Huber T, et al. A multilevel analysis of patient engagement and patient-reported outcomes in primary care practices of accountable care organizations. J Gen Intern Med.2017 [consultado 18 set 2020]; (6): [aprox. 8 p.]. Disponível em: https://doi.org/10.1007/s11606-016-3980-z.
  33. McCabe PJ, Stuart-Mullen LG, McLeod CJ, O Byrne T, Schmidt MM, Branda ME, et al. Patient activation for self-management is associated with health status in patients with atrial fibrillation. Patient Prefer Adherence. 2018 [consultado 25 set 2020]; 21(225): [aprox. 10 p.]. Disponível em: https://doi.org/10.2147/PPA.S172970.
  34. Yadav UN, Lloyd J, Hosseinzadeh H, Baral KP, Bhatta N, Harris MF. Levels and determinants of health literacy and patient activation among multi-morbid COPD people in rural Nepal: Findings from a cross-sectional study. Plos One. 2020 [consultado 30 dez 2020]. 15(5): [aprox. 16 p.]. Disponível em: https://doi.org/10.137/journal.pone.0233488.
  35. Zeng H, Jiang R, Zhou M., Wu L, Tian B, Zhang Y et al. Measuring patient activation in Chinese patients with hypertension and/or diabetes: reliability and validity of the PAM13. J Inter Med Resea. 2019 [consultado 26 set 2020]; 47(12): [aprox. 10 p.]. Disponível em: https://doi.org/10.1177/0300060519868327.
  36. Rask KJ, Ziemer DC, Kohler SA, Hawley JN, Arinde FJ, Barnes CS. Patient Activation Is Associated With Healthy Behaviors and Ease in Managing Diabetes in an Indigent Population. Diabetes Educ. 2009 Jul-Aug;35(4):622-30.
  37. Gleason KT, Tanner EK, Boyd CM, Saczynski JS, Szanton SL. Factors associated with patient activation in an older adult population with functional difficulties. Paciente Educ Couns. 2016 Ago; 99(8):1421-6.
  38. Lubetkin EI, Lu WH, Gold MR. Levels and correlates of patient activation in health center settings: building strategies for improving health outcomes. J Health Care Poor Underserved. 2010 Ago;21(3):796-808.
  39. Toobert DJ, Hampson SE, Glasgow RE. The summary of diabetes self-care activities measure: results from 7 studies and a revised scale. Diabetes Care. 2000 [consultado 09 jan 2021]; 23(7): [aprox. 8 p.]. Disponível em: https://doi.org/10.2337/diacare.23.7.943.
  40. Paliative Care Outcome Scale. POS S – Renal. [consultado 6 jun 2020]; Disponível em: https://pospal.org/mdlx/login/confirm.php?data=e1Rmq1ko0RLjFvS/de_rocha%40ymail%2Ecom.
  41. Golubinski V, Oppel EM, Schreyög J. A systematic scoping review of psychosocial and psychological factors associated with patient activation. Patient Educ Couns. 2020 Out;103(10):2061-8.
  42. Korpershoek Y, Bos-Touwen ID, de Man-van Ginkel JM, Lammers JW, Schuurmans MJ, Trappenburg J. Determinants of activation for self-management in patients with COPD. Int J Chron Obstruct Pulmon Dis. 2016 [consultado 9 ago 2020]; 1(11): [aprox. 10 p.]. 1757-66. Disponível em: https://doi.org/10.2147/COPD.S109016.
  43. Van den Bosch J, Warren DS, Rutherford PA. Review of predialysis education programs: a need for standardization. Patient Prefer Adherence. 2015 [consultado 7 out 2020]; 2015(9): [aprox. 13 p.]. Disponível em: https://doi.org/10.2147/ppa.s81284.
  44. Hall G, Bogan A, Dreis S, Duffy A, Greene S, Kelley K, et al. New directions in peritoneal dialysis patient training. Nephrol Nurs J. 2004 Mar-Abr; 31(2):159-63.
  45. Herdman M, Gudex C, Lloyd A, Janssen MF, Kind P, Parkin D, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res. 2011; [consultado 27 set 2020]; 20(10): aprox. 10 p.]. 1727-36. Disponível em: https://doi.org/10.1007/s11136-011-9903-x.
  46. Brooks R. EuroQol: the current state of play. Health Policy. 1996 [consultado 27 set 2020]; 37(1): [aprox. 10 p.]. Disponível em: https://doi.org/10.1016/0168-8510(96)00822-6.
  47. Measuring Dialysis Patients’ Health-Related Quality of Life with the KDQOL-36. [consultado 30 jul 2020]. Disponível em: https://www.kdqol-complete.org/pdfs/kdqol-36.pdf.
  48. Blakemore A, Hann M, Howells K, Panagioti M, Sidaway M, Reeves D et al. Patient activation in older people with long-term conditions and multimorbidity: correlates and change in a cohort study in the United Kingdom. BMC Health Serv Res. [Internet]. 2016; [consultado 21 set 2020]; 18;16 (1): [aprox. 11 p.]. DOI: https://doi.org/10.1186/s12913-016-1843-2.