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Objetivo: Explorar de manera comprensiva la experiencia vivida en el tratamiento de la Enfermedad Renal Crónica y los significados del cuidado elaborados por enfermeras y familiares que interactúan con estas personas. Método: Estudio cualitativo, enfoque fenomenológico-hermenéutico, empleando el referente teórico de Van Manen, 11 personas con la enfermedad, 5 cuidadores y 5 enfermeros participaron en el estudio, en la ciudad de Neiva; información recolectada a través de entrevistas en profundidad. Resultados: emergió el dilema entre la libertad y la vida al construir el sentido de afrontar el tratamiento de la Enfermedad Renal Crónica, los subtemas se enmarcaron en la dureza de la hemodiálisis, el significado de la máquina de diálisis, la apariencia de la fístula arterio venosa, el impacto del catéter peritoneal y la dieta. Conclusiones: el tratamiento de la enfermedad irrumpe en la vida de las personas produciendo cambios abruptos en su vida que los lleva a reconocer la finitud de su existencia, las alternativas para sobrevivir, los cambios en su corporeidad. De los cuales no son ajenos sus cuidadores y enfermeras, llamados a brindarles apoyo para lograr enfrentar el tratamiento.
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© Los autores ceden de forma no exclusiva los derechos de explotación de los trabajos publicados y consiente en que su uso y distribución se realice con la Licencia Creative Commons Atribución - No comercial 4.0 Internacional (CC BY-NC 4.0). Puede consultar desde aquí la versión informativa y el texto legal de la licencia. Esta circunstancia ha de hacerse constar expresamente de esta forma cuando sea necesario.
Referencias
- Ayar Y, Ersoy A, Ocakoglu G, Yildiz A, Oruc A, Soyak H, et al. Risk Factors Affecting Graft and Patient Survivals After Transplantation From Deceased Donors in a Developing Country: A Single-Center Experience. Transplant Proc 2017;49(2):270-7.
- Cruz V, Tagliamento G, Wanderbroocke AC. A manutenção da vida laboral por doentes renais crônicos em tratamento de hemodiálise: uma análise dos significados do trabalho. Saúde e Soc. 2016 Dec;25(4):1050-63.
- Bergjan M, Schaepe C. Educational strategies and challenges in peritoneal dialysis: A qualitative study of renal nurses’ experiences. J Clin Nurs. 2016;25(11-12):1729-39.
- Gill P. Stressors and coping mechanisms in live-related renal transplantation. J Clin Nurs 2012;21(11-12):1622-31.
- Cho M, Shin G. Gender-based experiences on the survival of chronic renal failure patients under hemodialysis for more than 20 years. Appl Nurs Res. 2016;32:262-8.
- Schaepe C, Bergjan M. Educational interventions in peritoneal dialysis: A narrative review of the literature. Int J Nurs Stud. 2015;52(4):882-98.
- Van Manen M. Phenomenology of practice: meaning-giving methods in phenomenological research and writing. 1ª ed. Walnut Creek: Routledge; 2014. p. 411.
- Patton M. Qualitative evaluation methods and Research Methods. 3rd ed. London: Sage; 2002. p. 806.
- Lincoln Y, Guba E. Naturalistic inquiry. Naturalistic inquiry. 1ª ed. Beverly Hills: Sage; 1985. p. 416.
- Campos C, Turato E. Hemodialysis treatment as perceived by the renal patient: clinical qualitative study. Rev Bras Enferm. 2010;63(5):799-805.
- Campos C, Mantovani F, Nascimento M, Cassi C. Social representations of illness among people with chronic kidney disease . Rev Gaucha Enferm. 2015;36(2):106-12.
- Niu H, Liu J. The psychological trajectory from diagnosis to approaching end of life in patients undergoing hemodialysis in China: A qualitative study. Int J Nurs Sci. 2017;4(1):29-33.
- Sciberras A, Scerri J. Facilitators and barriers to treatment with haemodialysis among persons in mid-adulthood: An interpretative phenomenological analysis. Scand J Caring Sci. 2017;31(4):695-701.
- Ramírez M, Ferrada M, Silva A, Courtin A, Malabrigo P. Exploring sexuality in women undergoing dialysis: A qualitative approach. Rev Nefrol Dial y Traspl. 2018;38(1):35-42.
- Mesa L, Carrillo A, Castiblanco R, Reina L, Ávila T. Renal replacement therapy: A meta-study and synthesis of qualitative evidence. Aquichan. 2017;17(3):328-52.
- Sadala M, Bruzos G, Pereira E, Bucuvic E. Patients’ experiences of peritoneal dialysis at home: a phenomenological approach. Rev Lat Am Enfermagem. 2012;20(1):68-75.
- Shubayra A. Continuous ambulatory peritoneal dialysis: nurses’ experiences of teaching patients. Saudi J Kidney Dis Transpl. 2015;26(2):309-13.
- Hong L, Wang W, Chan E, Mohamed F, Chen H. Dietary and fluid restriction perceptions of patients undergoing haemodialysis: an exploratory study. J Clin Nurs. 2017;26(21-22):3664-76.
- Kelly J, Campbell K, Hoffmann T, Reidlinger D. Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study. J Ren Nutr. 2018;28(6):393-402.
- Meuleman Y, Brinke L, Kwakernaak A, Vogt L, Rotmans J, Bos W, et al. Perceived Barriers and Support Strategies for Reducing Sodium Intake in Patients with Chronic Kidney Disease: a Qualitative Study. Int J Behav Med. 2015;22(4):530-9.
- Morales L, Castillo E. Vivencias de los adolescentes en diálisis: una vida con múltiples pérdidas pero con esperanza. Colomb Med. 2007;38(2):44-52.
- Polikandrioti M, Koutelekos I, Gerogianni G, Stefanidou S, Kyriakopoulos V, Floraki E, et al. Factors Associated with Hemodialysis Machine Dependency. Med Arch. 2017;71(2):122-7.
Referencias
Ayar Y, Ersoy A, Ocakoglu G, Yildiz A, Oruc A, Soyak H, et al. Risk Factors Affecting Graft and Patient Survivals After Transplantation From Deceased Donors in a Developing Country: A Single-Center Experience. Transplant Proc 2017;49(2):270-7.
Cruz V, Tagliamento G, Wanderbroocke AC. A manutenção da vida laboral por doentes renais crônicos em tratamento de hemodiálise: uma análise dos significados do trabalho. Saúde e Soc. 2016 Dec;25(4):1050-63.
Bergjan M, Schaepe C. Educational strategies and challenges in peritoneal dialysis: A qualitative study of renal nurses’ experiences. J Clin Nurs. 2016;25(11-12):1729-39.
Gill P. Stressors and coping mechanisms in live-related renal transplantation. J Clin Nurs 2012;21(11-12):1622-31.
Cho M, Shin G. Gender-based experiences on the survival of chronic renal failure patients under hemodialysis for more than 20 years. Appl Nurs Res. 2016;32:262-8.
Schaepe C, Bergjan M. Educational interventions in peritoneal dialysis: A narrative review of the literature. Int J Nurs Stud. 2015;52(4):882-98.
Van Manen M. Phenomenology of practice: meaning-giving methods in phenomenological research and writing. 1ª ed. Walnut Creek: Routledge; 2014. p. 411.
Patton M. Qualitative evaluation methods and Research Methods. 3rd ed. London: Sage; 2002. p. 806.
Lincoln Y, Guba E. Naturalistic inquiry. Naturalistic inquiry. 1ª ed. Beverly Hills: Sage; 1985. p. 416.
Campos C, Turato E. Hemodialysis treatment as perceived by the renal patient: clinical qualitative study. Rev Bras Enferm. 2010;63(5):799-805.
Campos C, Mantovani F, Nascimento M, Cassi C. Social representations of illness among people with chronic kidney disease . Rev Gaucha Enferm. 2015;36(2):106-12.
Niu H, Liu J. The psychological trajectory from diagnosis to approaching end of life in patients undergoing hemodialysis in China: A qualitative study. Int J Nurs Sci. 2017;4(1):29-33.
Sciberras A, Scerri J. Facilitators and barriers to treatment with haemodialysis among persons in mid-adulthood: An interpretative phenomenological analysis. Scand J Caring Sci. 2017;31(4):695-701.
Ramírez M, Ferrada M, Silva A, Courtin A, Malabrigo P. Exploring sexuality in women undergoing dialysis: A qualitative approach. Rev Nefrol Dial y Traspl. 2018;38(1):35-42.
Mesa L, Carrillo A, Castiblanco R, Reina L, Ávila T. Renal replacement therapy: A meta-study and synthesis of qualitative evidence. Aquichan. 2017;17(3):328-52.
Sadala M, Bruzos G, Pereira E, Bucuvic E. Patients’ experiences of peritoneal dialysis at home: a phenomenological approach. Rev Lat Am Enfermagem. 2012;20(1):68-75.
Shubayra A. Continuous ambulatory peritoneal dialysis: nurses’ experiences of teaching patients. Saudi J Kidney Dis Transpl. 2015;26(2):309-13.
Hong L, Wang W, Chan E, Mohamed F, Chen H. Dietary and fluid restriction perceptions of patients undergoing haemodialysis: an exploratory study. J Clin Nurs. 2017;26(21-22):3664-76.
Kelly J, Campbell K, Hoffmann T, Reidlinger D. Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study. J Ren Nutr. 2018;28(6):393-402.
Meuleman Y, Brinke L, Kwakernaak A, Vogt L, Rotmans J, Bos W, et al. Perceived Barriers and Support Strategies for Reducing Sodium Intake in Patients with Chronic Kidney Disease: a Qualitative Study. Int J Behav Med. 2015;22(4):530-9.
Morales L, Castillo E. Vivencias de los adolescentes en diálisis: una vida con múltiples pérdidas pero con esperanza. Colomb Med. 2007;38(2):44-52.
Polikandrioti M, Koutelekos I, Gerogianni G, Stefanidou S, Kyriakopoulos V, Floraki E, et al. Factors Associated with Hemodialysis Machine Dependency. Med Arch. 2017;71(2):122-7.