Contenido del artículo principal
Resumen
Introducción: En el trasplante renal de donante vivo, la percepción de la situación de enfermedad y la vivencia personal influyen de forma significativa en la adaptación emocional y el afrontamiento de la persona.
Objetivo: Conocer el significado que atribuyen las personas con trasplante renal de donante vivo a su enfermedad y a su tratamiento, y detectar si existen cambios antes y después trasplante.
Material y Método: Estudio cualitativo fenomenológico. Participaron 7 personas con enfermedad renal que recibieron un trasplante renal de donante vivo preventivo. Se obtuvieron los datos mediante entrevistas semiestructuradas y observación cualitativa.
Resultados: Del análisis temático de las entrevistas emergieron tres temas: sin sentimiento de enfermedad (no se sentían enfermos ni a nivel físico ni psicológico); sin necesidad de trasplantarse (la enfermedad no les alteró su vida, pero confiaron en los profesionales y aceptaron la cirugía); y trasplantarse para mantener el mismo modo de vida (para evitar la diálisis y recuperar actividades).
Conclusiones: El significado de la enfermedad y del trasplante renal cambian según la etapa (pre o post trasplante) en la que esté el paciente: la identificación de la enfermedad está relacionada con la presencia de sintomatología, con la sintomatología física y con las rutinas de toma de medicación diarias y visitas de seguimiento; y el trasplante renal, significa evitar la diálisis, hacer la misma vida, superar un reto y recuperar la condición física.
Palabras clave
Detalles del artículo
Derechos de autor 2024 Laura Rota, Meritxell Mondéjar Pont, Elvira-Carrascal, Molina-Robles, Oriol-Vila, Bou-Folgarolas
Esta obra está bajo una licencia internacional Creative Commons Atribución-NoComercial 4.0.
Aviso de derechos de autor/a
© Los autores ceden de forma no exclusiva los derechos de explotación de los trabajos publicados y consiente en que su uso y distribución se realice con la Licencia Creative Commons Atribución - No comercial 4.0 Internacional (CC BY-NC 4.0). Puede consultar desde aquí la versión informativa y el texto legal de la licencia. Esta circunstancia ha de hacerse constar expresamente de esta forma cuando sea necesario.
Referencias
- Meleis AI, Sawyer LM, Im EO, Messias DKH, Schumacher K. Experiencing transitions: an emerging middle-range theory. ANS Adv Nurs Sci [Internet]. 2000 [consultado 7 May 2024];23(1):12-28. Disponible en: https://doi.org/10.1097/00012272-200009000-00006 DOI: https://doi.org/10.1097/00012272-200009000-00006
- Guerrero C, Gallardo R. Conceptualización de la enfermedad renal y el trasplante. Psicología y Salud [Internet]. 2013 [consultado 23 Abr 2024];23(1):113-9. Disponible en: https://doi.org/10.25009/pys.v23i1.521
- Boaz A, Morgan M. Working to establish ‘normality’post-transplant: a qualitative study of kidney transplant patients. Chronic Illn [Internet]. 2014 [consultado 7 May 2024];10(4):247-58. Disponible en: https://doi.org/10.1177%2F1742395313504789 DOI: https://doi.org/10.1177/1742395313504789
- De Pasquale C, Veroux M, Indelicato L, Sinagra N, Giaquinta A, Fornaro M, Veroux P, Pistorio ML. Psychopathological aspects of kidney transplantation: Efficacy of a multidisciplinary team. World J Transplant [Internet]. 2014 [consultado 7 May 2024];4(4):267. Disponible en: https://dx.doi.org/10.5500%2Fwjt.v4.i4.267
- Kamran F. Living with a kidney transplant: Perceptions and experiences. J Appl Psychol [Internet]. 2014 [consultado 23 Abr 2024];2(1):5-12. Disponible en: http://www.sciappliedpsychology.com/articles/2/1/2
- Lacomba-Trejo L, Mateu-Mollà J, Álvarez EC, Benavent AMO, Serrano AG. Enfermedad renal crónica avanzada: ansiedad, depresión y percepción de amenaza. Revista de Psicología de la Salud [Internet]. 2021 [consultado 23 Abr 2024];9(1).Disponible en: https://revistas.innovacionumh.es/index.php/psicologiasalud/article/view/959 DOI: https://doi.org/10.21134/pssa.v9i1.710
- Griva K, Jayasena D, Davenport A, Harrison M, Newman SP. Illness and treatment cognitions and health related quality of life in end stage renal disease. Br J Health Psychol [Internet]. 2009 [consultado 7 May 2024];14(1):17-34. Disponible en: https://doi.org/10.1348/135910708X292355 DOI: https://doi.org/10.1348/135910708X292355
- Chilcot J, Norton S, Wellsted D, Davenport A, Firth J, Farrington K. Distinct depression symptom trajectories over the first year of dialysis: associations with illness perceptions. Ann Behav Med [Internet]. 2013 [consultado 7 May 2024];45:78–88. Disponible en: https://doi.org/10.1007/s120-012-9410-5 DOI: https://doi.org/10.1007/s12160-012-9410-5
- Parfeni M, Nistor I, Covic A. A systematic review regarding the association of illness perception and survival among end-stage renal disease patients. Nephrol Dial Transplant [Internet]. 2013 [consultado 7 May 2024];28:2407–14. Disponible en: https://doi.org/10.1093/ndt/gft194 DOI: https://doi.org/10.1093/ndt/gft194
- Rees J, Chilcot J, Donnellan W, Soulsby L. Exploring the nature of illness perceptions in people with end-stage kidney disease. J Ren Care [Internet]. 2018 [consultado 7 May 2024];44(1):19-29. Disponible en: https://doi.org/10.1111/jorc.12225 DOI: https://doi.org/10.1111/jorc.12225
- De Groot IB, Schipper K, Van Dijk S, Van der Boog PJ, Stiggelbout AM, Baranski AG, Marang-van de Mheen PJ. Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes. BMC Nephrol [Internet]. 2012 [consultado 7 May 2024];13(1):1-12. Disponible en: https://doi.org/10.1186/1471-2369-13-103 DOI: https://doi.org/10.1186/1471-2369-13-103
- Ummel D, Achille M. Transplant trajectory and relational experience within living kidney dyads. Qual Health Res [Internet]. 2016 [consultado 7 May 2024];26(2):194-203. https://doi.org/10.1177%2F1049732315570128 DOI: https://doi.org/10.1177/1049732315570128
- Gordon EJ. “They don’t have to suffer for me”: Why dialysis patients refuse offers of living donor kidneys. Med Anthropol Q [Internet]. 2001 [consultado 7 May 2024];15(2):245-67. https://doi.org/10.1525/maq.2001.15.2.245 DOI: https://doi.org/10.1525/maq.2001.15.2.245
- McGrath P, Pun P, Holewa H. Decision-making for living kidney donors: an instinctual response to suffering and death. Mortality [Internet]. 2012 [consultado 7 May 2024];17(3): 201-20. Disponible en: https://doi.org/10.1080/13576275.2012.696356 DOI: https://doi.org/10.1080/13576275.2012.696356
- Farahani ZB, Esmaeili M, Salsali M, Nayeri ND. Factors affecting iranian family donors’motivation for kidney donation. Acta Med Med 2016;32:1067–73. DOI: https://doi.org/10.4172/2161-0959.1000253
- Meyer KB, Bjørk IT, Wahl AK, Lennerling A, Andersen MH. Long-term experiences of Norwegian live kidney donors: qualitative in-depth interviews. BMJ open [Internet]. 2017 [consultado 7 May 2024];7(2):e014072. Disponible en: http://dx.doi.org/10.1136/ bmjopen-2016-014072 DOI: https://doi.org/10.1136/bmjopen-2016-014072
- Ummel D, Achille M, Mekkelholt J. Donors and Recipients of Living Kidney Donation: A Qualitative Metasummary of Their Experiences. J Transplant [Internet]. 2011 [consultado 7 May 2024]; Disponible en: https://doi. org/10.1155/2011/626501. DOI: https://doi.org/10.1155/2011/626501
- Heinemann LL. For the sake of others: reciprocal webs of obligation and the pursuit of transplantation as a caring act. Med Anthropol Q [Internet]. 2014 [consultado 7 May 2024]; 28(1): 66-84. Disponible en: https://doi.org/10.1111/maq.12060 DOI: https://doi.org/10.1111/maq.12060
- Schicktanz S, Schweda M, Wöhlke S. Gender issues in living organ donation: medical, social, and ethical aspects. Dins I. Klinge, C. Wiesemann (Ed.), Sex and Gender in Biomedicine 2010: 33-57. Universitätsverlag.
- Franklin PM, Crombie AK. Live related renal transplantation: psychological, social, and cultural issues. Transplantation [Internet]. 2003 [consultado 7May 2024];76(8):1247-52. Disponible en: https://doi.org/10.1097/01.TP.0000087833.48999.3D DOI: https://doi.org/10.1097/01.TP.0000087833.48999.3D
- Clemens KK, Thiessen-Philbrook H, Parikh CR, Yang RC, Karley MN, Boudville N, Ramesh GV, Garg AX. Psychosocial health of living kidney donors: a systematic review. Am J Transplant [Internet]. 2006 [consultado 7 May 2024];6(12): 2965–77. Disponible en: https://doi.org/10.1111/j.1600-6143.2006.01567.x DOI: https://doi.org/10.1111/j.1600-6143.2006.01567.x
- Klop KWJ, Timman R, Busschbach JJ, Dols LFC, Dooper IM, Weimar W, Ijzermans JNM, Kok NFM. Multivariate analysis of health-related quality of life in donors after live kidney donation. Transplant Proc [Internet]. 2018 [consultado 7 May 2024]; 50(1): 42–7. Disponible en:
- https://doi.org/10.1016/j.transproceed.2017.10.019 DOI: https://doi.org/10.1016/j.transproceed.2017.10.019
- Landreneau K, Lee K, Landreneau MD. Quality of life in patients undergoing hemodialysis and renal transplantation-a meta-analytic review. Nephrol Nurs J. [Internet]. 2010 [consultado 23 Abr 2024];37(1):37–44. Disponible en: https://www.proquest.com/openview/f5c6738a2b61bb49ece71e4ab731f0e8/1?pq-origsite=gscholar&cbl=45638
- Clarke KS, Klarenbach S, Vlaicu S, Yang RC, Garg AX. The direct and indirect economic costs incurred by living kidney donors—a systematic review. Nephrol Dial Transplant [Internet]. 2006 [consultado 7 May 2024];21(7):1952–60. Disponible en: https://doi.org/10.1093/ndt/gfl069 DOI: https://doi.org/10.1093/ndt/gfl069
- Kisch AM, Forsberg A, Fridh I, Almgren M, Lundmark M, Lovén C, Flodén A, Nilsson M, Karlsson V, Lennerling A. The meaning of being a living kidney, liver, or stem cell donor—a meta-ethnography. Transplantation [Internet]. 2018 [consultado 7 May 2024]; 102(5): 744-56. Disponible en: https://doi.org/10.1097/TP.0000000000002073 DOI: https://doi.org/10.1097/TP.0000000000002073
- Tong A, Chapman JR, Wong G, Kanellis J, McCarthy G, Craig JC. The motivations and experiences of living kidney donors: a thematic synthesis. Am J Kidney Dis [Internet]. 2012 [consultado 7 May 2024]; 60(1): 15-26. Disponible en: https://doi.org/10.1053/j.ajkd.2011.11.043 DOI: https://doi.org/10.1053/j.ajkd.2011.11.043
- Hanson CS, Chadban SJ, Chapman JR, Craig JC, Wong G, Ralph AF, Tong A. The expectations and attitudes of patients with chronic kidney disease toward living kidney donor transplantation: a thematic synthesis of qualitative studies. Transplantation [Internet]. 2015 [consultado 7 May 2024];99(3):540-54. Disponible en: https://doi.org/10.1097/TP.0000000000000433 DOI: https://doi.org/10.1097/TP.0000000000000433
- Ralph AF, Butow P, Hanson CS, Chadban SJ, Chapman JR, Craig JC, Kanellis J, Luxton G, Tong A. Donor and recipient views on their relationship in living kidney donation: thematic synthesis of qualitative studies. Am J Kidney Di [Internet]. 2017 [consultado 7 May 2024];69(5):602–16. Disponible en: https://doi.org/10.1053/j. DOI: https://doi.org/10.1053/j.ajkd.2016.09.017
- ajkd.2016.09.017 DOI: https://doi.org/10.1088/1475-7516/2016/09/017
- Hagger M, Orbell S. A meta-analytic review of the common sense model of illness representations. Psychol Health [Internet]. 2003 [consultado 7 May 2024];18,141–84. Disponible en: https://doi. org/10.1080/088704403100081321 DOI: https://doi.org/10.1080/088704403100081321
- Lønning K, Midtvedt K, Heldal K, Andersen MH. Older kidney transplantation candidates’ expectations of improvement in life and health following kidney transplantation: semistructured interviews with enlisted dialysis patients aged 65 years and older. BMJ open
- [Internet]. 2018 [consultado 7 May 2024]; 8(6),e021275. Disponible en: http://dx.doi.org/10.1136/ bmjopen-2017-021275
- Da Silva N, Sartori DL, Zink V, Roza BDA, Schirmer J. The experience of patients who need renal transplantation while waiting for a compatible organ. Texto & Contexto- Enfermagem [Internet]. 2013 [consultado 7 May 2024];22:1160-8. Disponible en: https://doi.org/10.1590/S0104-07072013000400035 DOI: https://doi.org/10.1590/S0104-07072013000400035
- Koons B, Smeltzer SC. The patient experience of waiting on the deceased donor kidney transplant list while receiving dialysis. Nephrol Nurs J. [Internet] 2018 [consultado 23 Abr 2024]; 45(4): 349-56. Disponible en: https://www.proquest.com/openview/a678838ce7847f92f24919ff813e4f2f/1?pq-origsite=gscholar&cbl=45638&casa_token=d0xdDyqu6SgAAAAA:JKEFNs99hi_zRYTHTBXoId0ia07--4A7iO5XB-D9fAdd1NDBQpy1CmbUCyOvlbmh3T06i2KGEcc
- Kleinman A. Writing at the margin. Discourse between anthropology and medicine 1998. University California Press.
- Davis LA, Grogan TM, Cox J, Weng FL. Inter-and intrapersonal barriers to living donor kidney transplant among black recipients and donors. J Racial Ethn Health Disparities [Internet]. 2017 [consultado 7 May 2024];4(4):671-9. Disponible en: https://doi.org/10.1007/s40615-016-0270-8 DOI: https://doi.org/10.1007/s40615-016-0270-8
- Young A. The anthropologies of illness and sickness. Annu Rev Anthropol [Internet]. 1982 [consultado 7 May 2024];11(1):257-85. Disponible en: https://doi.org/10.1146/annurev.an.11.100182.001353 DOI: https://doi.org/10.1146/annurev.an.11.100182.001353
Referencias
Meleis AI, Sawyer LM, Im EO, Messias DKH, Schumacher K. Experiencing transitions: an emerging middle-range theory. ANS Adv Nurs Sci [Internet]. 2000 [consultado 7 May 2024];23(1):12-28. Disponible en: https://doi.org/10.1097/00012272-200009000-00006 DOI: https://doi.org/10.1097/00012272-200009000-00006
Guerrero C, Gallardo R. Conceptualización de la enfermedad renal y el trasplante. Psicología y Salud [Internet]. 2013 [consultado 23 Abr 2024];23(1):113-9. Disponible en: https://doi.org/10.25009/pys.v23i1.521
Boaz A, Morgan M. Working to establish ‘normality’post-transplant: a qualitative study of kidney transplant patients. Chronic Illn [Internet]. 2014 [consultado 7 May 2024];10(4):247-58. Disponible en: https://doi.org/10.1177%2F1742395313504789 DOI: https://doi.org/10.1177/1742395313504789
De Pasquale C, Veroux M, Indelicato L, Sinagra N, Giaquinta A, Fornaro M, Veroux P, Pistorio ML. Psychopathological aspects of kidney transplantation: Efficacy of a multidisciplinary team. World J Transplant [Internet]. 2014 [consultado 7 May 2024];4(4):267. Disponible en: https://dx.doi.org/10.5500%2Fwjt.v4.i4.267
Kamran F. Living with a kidney transplant: Perceptions and experiences. J Appl Psychol [Internet]. 2014 [consultado 23 Abr 2024];2(1):5-12. Disponible en: http://www.sciappliedpsychology.com/articles/2/1/2
Lacomba-Trejo L, Mateu-Mollà J, Álvarez EC, Benavent AMO, Serrano AG. Enfermedad renal crónica avanzada: ansiedad, depresión y percepción de amenaza. Revista de Psicología de la Salud [Internet]. 2021 [consultado 23 Abr 2024];9(1).Disponible en: https://revistas.innovacionumh.es/index.php/psicologiasalud/article/view/959 DOI: https://doi.org/10.21134/pssa.v9i1.710
Griva K, Jayasena D, Davenport A, Harrison M, Newman SP. Illness and treatment cognitions and health related quality of life in end stage renal disease. Br J Health Psychol [Internet]. 2009 [consultado 7 May 2024];14(1):17-34. Disponible en: https://doi.org/10.1348/135910708X292355 DOI: https://doi.org/10.1348/135910708X292355
Chilcot J, Norton S, Wellsted D, Davenport A, Firth J, Farrington K. Distinct depression symptom trajectories over the first year of dialysis: associations with illness perceptions. Ann Behav Med [Internet]. 2013 [consultado 7 May 2024];45:78–88. Disponible en: https://doi.org/10.1007/s120-012-9410-5 DOI: https://doi.org/10.1007/s12160-012-9410-5
Parfeni M, Nistor I, Covic A. A systematic review regarding the association of illness perception and survival among end-stage renal disease patients. Nephrol Dial Transplant [Internet]. 2013 [consultado 7 May 2024];28:2407–14. Disponible en: https://doi.org/10.1093/ndt/gft194 DOI: https://doi.org/10.1093/ndt/gft194
Rees J, Chilcot J, Donnellan W, Soulsby L. Exploring the nature of illness perceptions in people with end-stage kidney disease. J Ren Care [Internet]. 2018 [consultado 7 May 2024];44(1):19-29. Disponible en: https://doi.org/10.1111/jorc.12225 DOI: https://doi.org/10.1111/jorc.12225
De Groot IB, Schipper K, Van Dijk S, Van der Boog PJ, Stiggelbout AM, Baranski AG, Marang-van de Mheen PJ. Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes. BMC Nephrol [Internet]. 2012 [consultado 7 May 2024];13(1):1-12. Disponible en: https://doi.org/10.1186/1471-2369-13-103 DOI: https://doi.org/10.1186/1471-2369-13-103
Ummel D, Achille M. Transplant trajectory and relational experience within living kidney dyads. Qual Health Res [Internet]. 2016 [consultado 7 May 2024];26(2):194-203. https://doi.org/10.1177%2F1049732315570128 DOI: https://doi.org/10.1177/1049732315570128
Gordon EJ. “They don’t have to suffer for me”: Why dialysis patients refuse offers of living donor kidneys. Med Anthropol Q [Internet]. 2001 [consultado 7 May 2024];15(2):245-67. https://doi.org/10.1525/maq.2001.15.2.245 DOI: https://doi.org/10.1525/maq.2001.15.2.245
McGrath P, Pun P, Holewa H. Decision-making for living kidney donors: an instinctual response to suffering and death. Mortality [Internet]. 2012 [consultado 7 May 2024];17(3): 201-20. Disponible en: https://doi.org/10.1080/13576275.2012.696356 DOI: https://doi.org/10.1080/13576275.2012.696356
Farahani ZB, Esmaeili M, Salsali M, Nayeri ND. Factors affecting iranian family donors’motivation for kidney donation. Acta Med Med 2016;32:1067–73. DOI: https://doi.org/10.4172/2161-0959.1000253
Meyer KB, Bjørk IT, Wahl AK, Lennerling A, Andersen MH. Long-term experiences of Norwegian live kidney donors: qualitative in-depth interviews. BMJ open [Internet]. 2017 [consultado 7 May 2024];7(2):e014072. Disponible en: http://dx.doi.org/10.1136/ bmjopen-2016-014072 DOI: https://doi.org/10.1136/bmjopen-2016-014072
Ummel D, Achille M, Mekkelholt J. Donors and Recipients of Living Kidney Donation: A Qualitative Metasummary of Their Experiences. J Transplant [Internet]. 2011 [consultado 7 May 2024]; Disponible en: https://doi. org/10.1155/2011/626501. DOI: https://doi.org/10.1155/2011/626501
Heinemann LL. For the sake of others: reciprocal webs of obligation and the pursuit of transplantation as a caring act. Med Anthropol Q [Internet]. 2014 [consultado 7 May 2024]; 28(1): 66-84. Disponible en: https://doi.org/10.1111/maq.12060 DOI: https://doi.org/10.1111/maq.12060
Schicktanz S, Schweda M, Wöhlke S. Gender issues in living organ donation: medical, social, and ethical aspects. Dins I. Klinge, C. Wiesemann (Ed.), Sex and Gender in Biomedicine 2010: 33-57. Universitätsverlag.
Franklin PM, Crombie AK. Live related renal transplantation: psychological, social, and cultural issues. Transplantation [Internet]. 2003 [consultado 7May 2024];76(8):1247-52. Disponible en: https://doi.org/10.1097/01.TP.0000087833.48999.3D DOI: https://doi.org/10.1097/01.TP.0000087833.48999.3D
Clemens KK, Thiessen-Philbrook H, Parikh CR, Yang RC, Karley MN, Boudville N, Ramesh GV, Garg AX. Psychosocial health of living kidney donors: a systematic review. Am J Transplant [Internet]. 2006 [consultado 7 May 2024];6(12): 2965–77. Disponible en: https://doi.org/10.1111/j.1600-6143.2006.01567.x DOI: https://doi.org/10.1111/j.1600-6143.2006.01567.x
Klop KWJ, Timman R, Busschbach JJ, Dols LFC, Dooper IM, Weimar W, Ijzermans JNM, Kok NFM. Multivariate analysis of health-related quality of life in donors after live kidney donation. Transplant Proc [Internet]. 2018 [consultado 7 May 2024]; 50(1): 42–7. Disponible en:
https://doi.org/10.1016/j.transproceed.2017.10.019 DOI: https://doi.org/10.1016/j.transproceed.2017.10.019
Landreneau K, Lee K, Landreneau MD. Quality of life in patients undergoing hemodialysis and renal transplantation-a meta-analytic review. Nephrol Nurs J. [Internet]. 2010 [consultado 23 Abr 2024];37(1):37–44. Disponible en: https://www.proquest.com/openview/f5c6738a2b61bb49ece71e4ab731f0e8/1?pq-origsite=gscholar&cbl=45638
Clarke KS, Klarenbach S, Vlaicu S, Yang RC, Garg AX. The direct and indirect economic costs incurred by living kidney donors—a systematic review. Nephrol Dial Transplant [Internet]. 2006 [consultado 7 May 2024];21(7):1952–60. Disponible en: https://doi.org/10.1093/ndt/gfl069 DOI: https://doi.org/10.1093/ndt/gfl069
Kisch AM, Forsberg A, Fridh I, Almgren M, Lundmark M, Lovén C, Flodén A, Nilsson M, Karlsson V, Lennerling A. The meaning of being a living kidney, liver, or stem cell donor—a meta-ethnography. Transplantation [Internet]. 2018 [consultado 7 May 2024]; 102(5): 744-56. Disponible en: https://doi.org/10.1097/TP.0000000000002073 DOI: https://doi.org/10.1097/TP.0000000000002073
Tong A, Chapman JR, Wong G, Kanellis J, McCarthy G, Craig JC. The motivations and experiences of living kidney donors: a thematic synthesis. Am J Kidney Dis [Internet]. 2012 [consultado 7 May 2024]; 60(1): 15-26. Disponible en: https://doi.org/10.1053/j.ajkd.2011.11.043 DOI: https://doi.org/10.1053/j.ajkd.2011.11.043
Hanson CS, Chadban SJ, Chapman JR, Craig JC, Wong G, Ralph AF, Tong A. The expectations and attitudes of patients with chronic kidney disease toward living kidney donor transplantation: a thematic synthesis of qualitative studies. Transplantation [Internet]. 2015 [consultado 7 May 2024];99(3):540-54. Disponible en: https://doi.org/10.1097/TP.0000000000000433 DOI: https://doi.org/10.1097/TP.0000000000000433
Ralph AF, Butow P, Hanson CS, Chadban SJ, Chapman JR, Craig JC, Kanellis J, Luxton G, Tong A. Donor and recipient views on their relationship in living kidney donation: thematic synthesis of qualitative studies. Am J Kidney Di [Internet]. 2017 [consultado 7 May 2024];69(5):602–16. Disponible en: https://doi.org/10.1053/j. DOI: https://doi.org/10.1053/j.ajkd.2016.09.017
ajkd.2016.09.017 DOI: https://doi.org/10.1088/1475-7516/2016/09/017
Hagger M, Orbell S. A meta-analytic review of the common sense model of illness representations. Psychol Health [Internet]. 2003 [consultado 7 May 2024];18,141–84. Disponible en: https://doi. org/10.1080/088704403100081321 DOI: https://doi.org/10.1080/088704403100081321
Lønning K, Midtvedt K, Heldal K, Andersen MH. Older kidney transplantation candidates’ expectations of improvement in life and health following kidney transplantation: semistructured interviews with enlisted dialysis patients aged 65 years and older. BMJ open
[Internet]. 2018 [consultado 7 May 2024]; 8(6),e021275. Disponible en: http://dx.doi.org/10.1136/ bmjopen-2017-021275
Da Silva N, Sartori DL, Zink V, Roza BDA, Schirmer J. The experience of patients who need renal transplantation while waiting for a compatible organ. Texto & Contexto- Enfermagem [Internet]. 2013 [consultado 7 May 2024];22:1160-8. Disponible en: https://doi.org/10.1590/S0104-07072013000400035 DOI: https://doi.org/10.1590/S0104-07072013000400035
Koons B, Smeltzer SC. The patient experience of waiting on the deceased donor kidney transplant list while receiving dialysis. Nephrol Nurs J. [Internet] 2018 [consultado 23 Abr 2024]; 45(4): 349-56. Disponible en: https://www.proquest.com/openview/a678838ce7847f92f24919ff813e4f2f/1?pq-origsite=gscholar&cbl=45638&casa_token=d0xdDyqu6SgAAAAA:JKEFNs99hi_zRYTHTBXoId0ia07--4A7iO5XB-D9fAdd1NDBQpy1CmbUCyOvlbmh3T06i2KGEcc
Kleinman A. Writing at the margin. Discourse between anthropology and medicine 1998. University California Press.
Davis LA, Grogan TM, Cox J, Weng FL. Inter-and intrapersonal barriers to living donor kidney transplant among black recipients and donors. J Racial Ethn Health Disparities [Internet]. 2017 [consultado 7 May 2024];4(4):671-9. Disponible en: https://doi.org/10.1007/s40615-016-0270-8 DOI: https://doi.org/10.1007/s40615-016-0270-8
Young A. The anthropologies of illness and sickness. Annu Rev Anthropol [Internet]. 1982 [consultado 7 May 2024];11(1):257-85. Disponible en: https://doi.org/10.1146/annurev.an.11.100182.001353 DOI: https://doi.org/10.1146/annurev.an.11.100182.001353